More bad days and a bad night...

I am sitting in the corner of our hospital room watching the nurses clean off my Zachy and change his bedding for the 4th time in the last 2 hours.

I feel utterly helpless.

He is in pain and is not keeping anything down.

I know this was the best choice for us. I don't regret the surgery we just had.

I know it will be the best thing in the long run.

We just have to make it through all of this.

Right?

We are going to make it through this.

We just have to make it through this...

Home

As I type this discharge papers are being written.  I KNOW! Can you believe it...It has not even been a full 5 days. Things are moving forward so well they said that we could just do all his cares at home.

There isn't that much to do.. Just the normal changing diapers and dosing meds. I do that anyway so this is nothing new. Dang... I should SO be a nurse. probably not... thats okay though.

I am excited to be in my own space again. I am in awe with how this whole thing went.

There is that saying about taking that first scary step into the darkness with faith and then looking back and saying, that wasn't  so bad at all. Why did I do this along time ago. I feel that same way. In a blessing I recived I was told that I needed to have faith. All I needed to do was take that first step in to that scary dark room full of the unknown. Once I did that my Faith would make that room glow like it never has before.

Looking at my cute son laying in his hospital bed I see someone that has unwavering faith. He is the Lords gift to me. Now he is using that spirit of his to touch other peoples lives. He makes me want to be such a better person.

This isn't the end... We still have so many Chapters left to write. I would love to have you accompany us to the next Chapter.

I would love to know who you all are. There are many of you that have come to join in Zach's fight. Don't be afraid to send your love through the comments section. Your word of encouragement have helped me so much, Zach has felt them too!